PANDAS Syndrome - Be aware of this.

[BaggieSingh]

Really sorry to hear this Mick, and also have first hand experience of auto immune conditions and the issues they can cause
My daughter went from a happy normal 8 year old to not being able to stand or even wanting to move anything even turn her head was painful
She spend over 3 months in a wheelchair with mr doing pretty much everything for her after quitting work

We went to so many doctors private and NHS and all thought it was psychological as her tests weren’t showing anything

Absolute jokers really when we could see she wasnt faking it

I had to march into Birmingham Childrens during the pandemic and tell them I wasn’t leaving until they figured it out to get something done, we stayed in for a week and they were great but she has something rare that only 2 people per million her annually, much like Al above doctors aren’t aware of the issue or symptoms even though it can be fatal

Hope you manage to sort things out, as once we git her on the right meds she’s been much better, so at least we know she will never get to that state again even if she comes off the meds in a year

Heart breaking to see kids going through these sort of things